Episode 134 – What chronic illness actually is (and isn't)

In this episode, I’m going back to basics and defining what chronic illness really means – because there’s a lot of rubbish out there about what having a chronic condition means for your life.

What it IS: 

  • Any health condition lasting longer than 3 months that typically can’t be completely cured 
  • Includes ME, diabetes, fibromyalgia, MS, IBD, endometriosis – and yes, anxiety disorders too 
  • Means managing something ongoing, with some days harder than others 
  • Affects us physically, mentally, emotionally, and socially

What it ISN’T: 

  • A full stop on your life or dreams 
  • The same experience for everyone 
  • Always visible to others 
  • Something to feel guilty about 
  • A sign you’re broken or less-than

When I was diagnosed with ME in 2009, I was told I’d never run again. Since then? I’ve completed two marathons. Because chronic doesn’t mean static, unchanging, or over.

You get to define what living well looks like for you – not your doctor, not well-meaning friends, not outdated ideas about chronic illness. YOU.

 

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Transcript of episode

Hello loves, how are you today?

If you’re new here, I’m Lorraine, and this is the Life in Align podcast – where we talk about living a full, vibrant life alongside chronic illness, not despite it.

So today, we’re going back to basics. And I know what you might be thinking – we’re over 130 episodes in, why are we talking about what chronic illness actually is?

Well, here’s the thing: I’ve realised that we throw this term around all the time, but we rarely stop to define it. And more importantly, we rarely talk about what it isn’t. Because there’s a lot of rubbish out there about what having a chronic condition means for your life.

Let me start with this

Chronic illness is, at its simplest, any health condition that lasts longer than three months and typically cannot be cured completely. We’re talking about things like ME – which I was diagnosed with back in 2009 – fibromyalgia, arthritis, multiple sclerosis, inflammatory bowel disease, endometriosis… the list goes on. And here’s something that might surprise you: anxiety disorders absolutely fit into this category too. If you’re living with persistent anxiety that affects your daily life, that’s a chronic condition. Full stop.

When I got my ME diagnosis in 2009, and subsequently orthostatic hypotension and some breathing issues, I was told I’d never run again. Just… never. As if that chapter of my life had closed permanently. And I’ll be honest, for a while, I believed it.

But here’s what they didn’t tell me: chronic doesn’t mean static. It doesn’t mean unchanging. It doesn’t mean over. Since that diagnosis, I’ve run two marathons. Yes, they were slower than my pre-diagnosis days – quite a bit slower, actually – but my feet crossed those finish lines. Both times.

The reality – what it is

So what does chronic illness actually mean for how we live? It means we’re managing something ongoing. It means some days are harder than others – sometimes a lot harder. It means we might need to plan differently, rest more strategically, and yes, sometimes cancel plans or adjust expectations.

Chronic illness can affect us physically, mentally, emotionally, and socially. It might mean brain fog when you’re trying to concentrate at work. It might mean needing to sit down more often than you’d like. It might mean explaining to friends why you can’t commit to plans weeks in advance because you genuinely don’t know how you’ll feel.

And if anxiety is your chronic condition, it might mean your heart racing before a meeting, intrusive thoughts that loop endlessly, or physical symptoms that feel very real because they are very real – anxiety lives in our bodies, not just our minds.

What it isn’t – the myths

But here’s what chronic illness isn’t: it isn’t a full stop on your life. It isn’t an excuse to give up on your dreams, your career, or your relationships. It isn’t something you should feel guilty about. And it absolutely isn’t something that means you’re broken or less-than.

You know what else it isn’t? It isn’t always visible. Some of the women I work with look absolutely fine on the outside, including me, whilst battling enormous challenges internally. And that invisibility can be exhausting in its own way – constantly having to prove or explain something people can’t see.

It also isn’t the same experience for everyone. Two people with the same diagnosis can have wildly different symptoms, different triggers, different good days and bad days. So if your chronic illness looks different from someone else’s, that doesn’t make yours less valid.

The anxiety connection

Let’s talk about anxiety for a moment, because this is important. If you’re living with physical chronic conditions, anxiety often comes along for the ride – health anxiety about symptoms, worry about the future, stress about managing everything. But anxiety can also be the primary chronic condition, and it deserves exactly the same respect, understanding, and management strategies as any physical illness.

Whether your anxiety developed because of other health issues or exists on its own, it’s real, it’s valid, and it’s manageable. Just like learning to pace yourself with ME or manage blood sugar with diabetes, you can learn to work with anxiety rather than feeling controlled by it.

The empowering reality

Here’s what I want you to take away from today: having a chronic condition means you’re managing something long-term. It doesn’t mean you’re failing. It doesn’t mean your life is over. It doesn’t mean you can’t have a career, relationships, adventures, or joy.

What it does mean is that you might need to be a bit more creative, a bit more intentional, and yes, a bit more patient with yourself. It means learning what works for your body and your mind. It means some days you’ll feel frustrated, and that’s okay. It means other days you’ll feel unstoppable, and that’s okay too.

You’re not dwelling in self-pity by acknowledging your chronic condition – you’re being realistic so you can plan effectively. You’re not giving up on your life – you’re adapting so you can keep living it as fully as possible. And you’re definitely not alone in this

So whatever your chronic condition is – whether it’s physical, mental, or both – I want you to know: you get to choose what living well looks like for you. Not your doctor, not your well-meaning friends, not some outdated idea of what chronic illness means. You.

Thanks for listening to this episode of the Life in Align podcast.

And remember, you are worth it, and you get to choose.

Have a lovely day.